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Event Rare Disease Days – Bundaran HI Jakarta

2016-02-28
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Rare Disease Day event organized by the Indonesian Community of Rare Disorders aims to provide support for people who were born with rare disorder...

Rare Disease Day event organized by the Indonesian Community of Rare Disorders aims to provide support for people who were born with rare disorder / disease as well as provide information about rare disorder & disease in order to increase awareness of this matter in Indonesia. In 2016, Rare Disease Days bears the theme "Patient Voice: Join Us in Making the Voice of Rare Diseases Heard", with a series of events ranging from blood donors, photo corner, genetics consultation, psychological counseling, legal consultations, distribution of booklets and free pin held during Car free Day.

Together with the community of Family Members FP Indonesia Rare Disorders, Families of persons with Pierre Robin Sequence,...

Rare Disease Day event organized by the Indonesian Community of Rare Disorders aims to provide support for people who were born with rare disorder / disease as well as provide information about rare disorder & disease in order to increase awareness of this matter in Indonesia. In 2016, Rare Disease Days bears the theme "Patient Voice: Join Us in Making the Voice of Rare Diseases Heard", with a series of events ranging from blood donors, photo corner, genetics consultation, psychological counseling, legal consultations, distribution of booklets and free pin held during Car free Day.

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